Julianna

Girl, Age: 13
Country Code: EE-2
Primary Diagnosis: Spina bifida
Shunt,
Listed: Sep 2022
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
The girl has a congenital defect of the nervous system in the form of a meningeal hernia at the lumbosacral level, a bifurcation of the thoracic spine with hydrocephalus and paralysis of the lower limbs. The girl has a valve in her head that regulates the blood flow in the head and prevents the increase in intracranial pressure. She also has a neurogenic bladder – she needs to drink fluids regularly and change the catheter every 3 hours. She has a visual impairment, wears glasses: ER: +3.5, EL: +4. and uses a wheelchair.

Despite her disabilities, the girl is very active. She is very happy to work during rehabilitation, thanks to which she is willing to participate in social life and has accepted her disabilities. She is attending wheelchair dance classes. The girl functions very well on a daily basis and is independent.  She likes to play with younger children and often organizes games for them.