Girl, Age: 5
Region: Eastern Europe
Primary Diagnosis: Congenital Heart Defect
Cornelia de Lange syndrome. Congenital heart malformation – high-degree pulmonary stenosis, atrial septal defect II type; Condition following balloon angiovalvuloplasty;
Listed: Mar 2023
Family history: mother with thalassemia minor
Josie currently lives in a group home. She is very small for her age. She can turn from her back to her stomach. She tracks objects with her eyes and reacts with smiles and positive movements/expressions when an adult interact with her.
