Boy, born January 2008
Epidermodysplasia Verruciformis (EV)
Aslan has the heart of a lion. Every day he manages the physical effects of his special need. He likely has Epidermodysplasia Verruciformis. EV is a rare inherited condition characterized by chronic infection with human papillomavirus (HPV) leading to multiple cutaneous lesions. It can be disfiguring and is rapidly progressive not only in terms of physical deformity but also functionality. Little Aslan’s fingernails have growth long and difficult to use. The condition is not contagious to others and is not life threatening. With close medical multidisciplinary care it can be managed. Regardless of all of this, Aslan is determined to enjoy his friends and all that his current life has to offer him. Video taken in April 2015 shows his exhuberance.
Aslan’s reports from March 2015 share, “Now Aslan is extroverted; active, relentless; can run and jump freely; has a ready smile; talkative; can communicate well with others; like singing, dancing and telling stories; outstanding performance in our institute; strong receptivity of knowledge; can put on and take off clothes and shoes by himself; like clean up; helpful; can distinguish position, color, size and shape; know to share and give; coralloid adamant on whole body’s skin except for belly and back; such coralloid adamant will fall off after a period of time; if touches such coralloid adamant by accident, it will be bleeding and hurting.”
$2,140.33 has been donated towards the cost of my adoption!