Girl, Age: 13
Country Code: Asia.1
Region: Asia
Primary Diagnosis: Other Special Needs
Tuberos Sclerosis — Congenital Bourneville-Pringle Syndrome
Listed: Apr 2013
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
Amelia likes to dance, listen to stories, read picture books, and play hide-and-seek. She came into care around 8 months of age and was sponsored by Half the Sky Foundation’s nurturing program for infants. At 9 months, she could sit steadily alone for a few minutes, grab her feet with her hands, and hold her hands up to be held. At one year of age, she could hold toys and stand when leaning on objects. She enjoyed sitting and rocking on the wooden horse. At 15 months, she was more outgoing and could stand for a long time when holding onto a support. She could grasp toys nearby and she could walk slowly with assistance. When it was time to take a nap, she would shake her head “no.” She could pick up objects with her thumb and index fingers.
Her condition became more serious in 2009, and we hope to see her come home soon so that she can receive the best medical treatment for her condition. Her caregivers exercise her daily to improve her symptoms, and say that “she has already taken the first step in life and will do better in the future.”
