Mike has polymalformative syndrome, complex congenital heart disease, agenesis of the left radius and thumb, agenesis of the right kidney, psychomotor developmental delay, intestinal malrotation, and asplenia, for which he receives prophylactic treatment. He has undergone several cardiac interventions, including pulmonary venous return, Glen surgery, and two catheterizations, and he is expected to undergo another catheterization and heart surgery (Fontan procedure) in the future.
He also has gastroesophageal reflux disease, treated with Nissen fundoplication, and a gastrostomy. Mike receives multidisciplinary care across pediatrics, nutrition, ENT, orthopedics, plastic surgery, child psychiatry, and gastroenterology, with upcoming appointments in genetics and developmental pediatrics. He takes medications including captopril, cetirizine, mometasone nasal spray, amoxicillin, vitamin D, and acetylsalicylic acid.
Mike is a courageous and resilient little boy, making progress every day with dedicated medical care and support.
