Clifton #

Boy, Age: 9
Born with positive Wassermann test result; he underwent treatment with Penicillin; ectopic left kidney; convergent concomitant strabismus; hypermetropia (long-sightedness); dolichocephaly; Arnold-Chiari syndrome, type I; irritable bowel syndrome without diarrhea; secondary lactase deficiency; food allergy – slight intolerance to foods containing gluten, dairy products and eggs;delayed physical development; generalized developmental disorder; moderate mental delay

specific disorders of motor function development, Moderate mental delay, ectopic left kidney, strabismus

Listed: Mar 2017
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
$0.00
has been donated towards the cost of my adoption!

Your gift will serve ALL of the children, as 10% of each Waiting Child Donation is shared with our Voice of Hope fund, as well!
Clifton lives with a foster family.  He loves to listen to music and dance and is always looking for a dancing partner! His foster family is working on him walking longer distances independently.  He is learning how to play with toys and interact appropriately with other children.  He has few words and does not follow verbal directions.  Clifton is receiving therapy multiple times a week.

Clifton’s gross motor skills are well-developed – he moves around independently, even at long distances, and he has no difficulties walking on different surfaces. He can now run (since the beginning of January 2017). The deficits noted previously in Clifton’s fine motor skills have been compensated to a great extent. He can transfer small elements with a spoon from one bowl into another with an adult’s assistance, he plays with certain materials and toys, he clips and unclips clothes pegs, he looks for an object hidden in the sand and he takes it out with great interest. He holds a pencil and leaves pale traces with it on a sheet of paper. He does great eating with a spoon. Clifton accepts the toothbrush and allows for his teeth to be brushed.

It happens more and more rarely for Clifton to demonstrate anxiety in response to being introduced to unfamiliar places and people. The stereotypic movements he demonstrates when someone initiates interactions with him have decreased significantly. He imitates actions he has observed more often and more successfully than before. Clifton becomes lively and starts dancing whenever someone is singing or plays music.

Clifton is  calm in his new foster family, he often smiles and he laughs aloud while playing with an adult (or with the girls in the foster family). He is especially attached to the foster father and the younger daughter in the family. Clifton has become a lot more sociable in the last 6 months: he seeks children’s attention, initiates interactions, accepts unfamiliar people a lot easier, maintains a smaller distance between himself and others and makes eye contact.

Although Clifton has poor passive vocabulary, he follows simple instructions provided that those are accompanied by nonverbal means of communication. His speech development is at the level of producing chains of syllables. He uses “No” appropriately so as to express his disagreement, he sometimes uses “Yes” and “Give me”. Clifton initiates physical and emotional contact with his foster parents and their children as well as with the specialists working with him. He is especially attached to the foster father and the youngest daughter in the foster family. His interactions with other children have changed significantly – he plays with them for a long time and he is making attempts to cooperate with them.

More photos/file are available from his agency

Connor #

Boy, Age: 10
Primary Diagnosis: Genetic Condition (non-DS)
Listed: Sep 2015
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
Severely impaired condition, polymalformative syndrome: Dandy-Walker syndrome, epilepsy, congenital hydrocephalus-ventriculoperitoneal shunt installed, dysfunction of the valve with a neuroinfection and a surgical treatment and revision of the valve system in the spring of 2015; anal atresia, sigmostoma and sagittal proctoplasty; mylticystic right kidney, kidney dysplasia, pyelectasis and hypertrophy of the left kidney, severe mental delay.

Connor is being raised in one of the biggest orphanages in Bulgaria where children often suffer from severe malnutrition, muscle hypotrophy and have severe delays in the neuropsychological development. He has a polymalformative syndrome, but one could see a dramatic change in his appearance in just two pictures- the first one taken in the end of November 2014 and the second one in June 2015.

He grabs a toy that is handed to him, holds it for a while and manipulates with it. He has started to more and more often reach with his hands and manipulate with hanging toys independently.

While involved in active interactions with adults, he would make his emotional responses known with his nonverbal behavior. He seeks contact with familiar adults by reaching out his hand, grabbing an adult’s hand and he would even sometimes direct an adult’s hand towards his face so as to be caressed.

He falls asleep easily and his sleep is calm. He is fed with a bottle. He gets anxious while his clothes are changed and while bathed.

Regina

Girl, Age: 13
Country Code: EE-1
Primary Diagnosis: Genetic Condition (non-DS)
Aperts syndrome
Listed: Aug 2017
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
Regina’s Apert’s syndrome does not prevent this curly-haired little girl from playing, learning, and living an active life! Regina is an intelligent and imaginative child who enjoys dolls, swings, slides – and watermelon! Could she be your daughter?

Regina needs corrective surgery for her hands, feet, and face, to help her be all she can be. A loving family would give Regina a future outside of a bleak institution.

Many additional pictures and videos of Regina are available upon inquiry.

Jared

Boy, Age: 14
Country Code: EE-1
Primary Diagnosis: Genetic Condition (non-DS)
Stickler Syndrome. His medical records also indicate microcephaly, a common symptom of SS.
Listed: Jun 2010
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
This handsome young man, with dark hair and dark eyes, was born with a rare genetic condition called Stickler Syndrome. His medical records also indicate microcephaly, a common symptom of SS.

Update May 2016: Jared has been transferred a while ago from his baby orphanage.

Individuals with Stickler syndrome experience a range of signs and symptoms. Some people have no signs and symptoms; others have some or all of the features described below. In addition, each feature of this syndrome may vary from subtle to severe.

A characteristic feature of Stickler syndrome is a somewhat flattened facial appearance. This is caused by underdeveloped bones in the middle of the face, including the cheekbones and the bridge of the nose. A particular group of physical features, called the Pierre Robin sequence, is common in children with Stickler syndrome. Robin sequence includes a U-shaped or sometimes V-shaped cleft palate (an opening in the roof of the mouth) with a tongue that is too large for the space formed by the small lower jaw. Children with a cleft palate are also prone to ear infections and occasionally swallowing difficulties.

Many people with Stickler syndrome are very nearsighted (described as having high myopia) because of the shape of the eye. People with eye involvement are prone to increased pressure within the eye (ocular hypertension) which could lead to glaucoma and tearing or detachment of the light-sensitive retina of the eye (retinal detachment). Cataract may also present as an ocular complication associated with Stickler’s Syndrome. The jelly-like substance within the eye (the vitreous humour) has a distinctive appearance in the types of Stickler syndrome associated with the COL2A1 and COL11A1 genes. As a result regular appointments to a specialist ophthalmologist are advised. The type of Stickler syndrome associated with the COL11A2 gene does not affect the eye.

People with this syndrome have problems that affect things other than the eyes and ears. Arthritis, abnormality to ends of long bones, vertebrae abnormality, curvature of the spine, scoliosis, joint pain, and double jointedness are all problems that can occur in the bones and joints. Physical characteristics of people with Stickler can include flat cheeks, flat nasal bridge, small upper jaw, pronounced upper lip groove, small lower jaw, and palate abnormalities, these tend to lessen with age and normal growth and palate abnormalities can be treated with routine surgery.

Another sign of Stickler syndrome is mild to severe hearing loss that, for some people, may be progressive (see hearing loss with craniofacial syndromes). The joints of affected children and young adults may be very flexible (hypermobile). Arthritis often appears at an early age and worsens as a person gets older. Learning difficulties, not intelligence, can also occur because of hearing and sight impairments if the school is not informed and the student is not assisted within the learning environment.

Stickler syndrome is thought to be associated with an increased incidence of mitral valve prolapse of the heart, although no definitive research supports this.

Ozzie #

Boy, Age: 7
Primary Diagnosis: Genetic Condition (non-DS)
Coffin-Lowry Syndrome
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
Ozzie has decreased muscle tone. He can’t walk, but has recently started standing up in his crib with support. He smiles and has positive emotions when interacting with adults and when he is with the other children. He pronounces combinations of sounds. He laughs when playing peek-a-boo.

*There is an older child that is believed to be Ozzie’s older brother. However, they are NOT listed as needing to be adopted together. The other child is listed as Ollie.

Ollie #

Boy, Age: 9
Primary Diagnosis: Genetic Condition (non-DS)
Coffin-Lowry Syndrome
Listed: Dec 2018
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
Ollie is now living in foster care. He is physically well developed. He has good coordination of his hands and feet. He walks without falling, and can run as well. Climbs up and goes down by the stairs when holding an adult or the railing. He can play with cubes by putting them and taking them out of a cup, but has some problems manipulating with smaller objects. He cannot eat and dress by himself yet, but does make attempts. He understood almost everything and fulfils small tasks. He likes playing hide and seek. He hides behind the door and when he is found, he laughs and stomps his feet. He is interested in musical cartoons and copies the movements of the actors.

*There is a younger child that is believed to be Ollie’s younger brother. However, they are NOT listed as needing to be adopted together. The other child is listed as Ozzie.

Molly May #

Girl, Age: 6
Primary Diagnosis: Genetic Condition (non-DS)
Trisomy 7; cleft lip & palate; Cerebral Palsy
Listed: May 2019
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
$0.00
has been donated towards the cost of my adoption!

Your gift will serve ALL of the children, as 10% of each Waiting Child Donation is shared with our Voice of Hope fund, as well!
Molly May has made progress in her development during recent months. She is able to sit unassisted, get up on her knees and has begun to start trying to move around in a walker. She is becoming more physically active. She makes eye contact, looks around for families adults and smiles when someone looks at her. She will laugh out loud when an adult plays with her. She watches children’s cartoons and movies on the TV and will get excited and point to the screen when the TV is turned on. She picks up toys and attempts to play with them. She still needs instructions in how to appropriately play with toys. She makes vocalizations in an effort to communicate. She eats soft foods from a spoon.

Molly May has undergone multiple surgeries to repair her cleft lip & palate. She is under the continued care of the doctor who is performing these procedures. She is also under the regular care of a neurologist, who diagnosed her with CP in 2018. She had suffered from “constant shaking” resulting in uncontrollable movements up until a few months ago. The social worker reports that this has greatly improved and that Molly May’s movement are now more calm and she also sleeps calmly too. Videos taken in April 2019 show her interacting with toys.

Photos and videos are available through the agency.

Josiah #

Boy, Age: 5
Primary Diagnosis: Genetic Condition (non-DS)
genetic metabolic disease – pyruvate-kinase deficiency – homozygote mutation p-R 446; mild to moderate core and periventricular lesions; generalized muscle hypotonia; severely delayed physical and neuro-psychological development;
Listed: Oct 2018
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
Josiah moves in space by turning from back to belly and vice versa. He has started forming some of the perceptions about objects from his constant surroundings and everyday life. He connects some objects from his surroundings with the actions performed with them.

When awake, Josiah is mostly calm. He would laugh out loud when jested. During active interactions with adults Josiah pronounces various sounds and random syllables. Josiah follows a specific dietary regime and has food individually prepared for him. He is fed with a spoon by an adult and has a picky appetite. He is calm during dressing and bathing. Josiah’s sleep is calm.

Isla #

Girl, Age: 4
Pierre Robin sequence (cleft lip & palate); strabismus; global developmental delays; strabismus
Listed: Feb 2021
*** I am eligible for a $2,000 Grant! ***
This grant is offered by Reece’s Rainbow, for children in this specific country. Grant funds are dependent on available funding. For more information, email childinquiry@reecesrainbow.org ***
Isla can crawl, slowly walks, climbs and goes down steps. She does not react to any sounds or to people talking to her. Her report indicates that her hearing is normal, despite repeated observations that she does not react at all to any sounds.When a toy is placed in front of her field of vision, she will reach for it and hold it in her hand.  She enjoys playing with light up toys.

Rachel

Girl, Age: 9
Region: Asia
Primary Diagnosis: Genetic Condition (non-DS)
Apert Syndrome
Listed: Oct 2014
$1,239.90
has been donated towards the cost of my adoption!

Your gift will serve ALL of the children, as 10% of each Waiting Child Donation is shared with our Voice of Hope fund, as well!
Meet Rachel! She has been diagnosed with Apert Syndrome and hand and foot deformities. Because of her special needs, Rachel’s development is behind other children, but she has an active personality just waiting to blossom! Rachel loves taking showers and playing in the water. She can’t hold toys well but she likes to bat at them with her hands, and she loves any toy that makes noise. Rachel especially loves to be held. In fact, her caregivers tell us that is her favorite thing to do! Rachel loves nothing more than to sit on someone’s lap and be loved. Rachel needs a family to snuggle with her and help her become all she is meant to be. Could your family welcome this sweet little girl into your life?

Rebekah

Girl, Age: 15
Country Code: S.Asia.1
Region: Asia
Primary Diagnosis: Genetic Condition (non-DS)
Apert syndrome, craniosyntosis (frontal skull reconstruction done, midface advance needed, would be best done in the US), syndactyly of feet and hands (fingers surgically separated–has 4 digits on each hand).
Listed: Nov 2017
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
March 2020 Update: Rebekah is continuing to improve her literacy in both her native language and English. She is working on reading and writing sentences and expanding vocabulary. She is able to do small simple addition with single digits, and is working on moving on to double digit addition. In pre-vocational classes, she is learning to make paper chains and improving her needle and threading skills.

Rebekah feeds herself independently and calls people by name. She can identify objects and colors. She is independent in indicating her needs and independent in her self care. She is attending on site school where she can write numbers 1 to 200. She loves counting things. She knows and writes all of her upper and lower case letters. She is reading and writing 3 letter words. She can spell her name. She doesn’t want to miss out on what is happening, she is eager to be a part of the fun. She enjoys sitting with adults and telling stories. She loves to color, draw and write. She is proud to be a helper and to be independent. She is working on pre-vocational skills of washing dishes and sweeping and fine motor skills like beading, threading, and cutting with scissors. She is well liked by all the staff and is helpful in the home. She has several very close friends with whom she gets all very well.

Penny

Girl, Age: 12
Country Code: S.Asia.1
Region: Asia
Primary Diagnosis: Genetic Condition (non-DS)
Penny appears to have a genetic syndrome – possibly Rubinstein-Taybi – but further genetic testing is required to confirm. It was also discovered in January 2016 that she is profoundly deaf. Left eye convergent strabismus, right eye dominant, wears glasses.
Listed: Feb 2018
**** I am eligible for a $5000 Older Child Grant ****
Grant funds depend on available funding; the link above, shows the current available amount!
To inquire about this child, email childinquiry@reecesrainbow.org ***
February 2020 update: Penny can take steps with assistance and uses a gait trainer to walk around. Penny is a big fan of sensory play! She will sit beside a tub of water and swirl the water round and round. Penny also enjoys finding objects hidden in sensory containers. She slowly drags her hands through the container finding the objects hidden beneath the surface. Penny is a friendly child who loves people so much! When someone walks into the room and approaches her, she gets so excited. Penny will flap her arms and grin from ear to ear, giggling the whole time. Penny loves being held and squeezed tightly. She also enjoys having her face cupped between her or someone else’s hands. Penny finds a lot of amusement in holding people’s hands and guiding them over a light source to create shadows which she intently watches as they bend and flow. Sweet Penny loves deeply and it is very easy to love her right back.

Nelly

Girl, Age: 3
Country Code: EE-6
Primary Diagnosis: Genetic Condition (non-DS)
adrenogenital disorders, congenital anomalies, anemia, small weight at birth, chromosomal anomaly, syndactyly, developmental delays
Listed: Aug 2019
$1,568.18
has been donated towards the cost of my adoption!

Your gift will serve ALL of the children, as 10% of each Waiting Child Donation is shared with our Voice of Hope fund, as well!
We don’t know a lot about sweet Nelly yet, but the agency does have videos of her they can share with inquiring families. Nelly can crawl and can do so well. She loves scooting her way to toys she finds interesting. Nelly can sit up on her own. She enjoys attention and will sometimes interact with other children.