Girl, Age: 11
Penny appears to have a genetic syndrome – possibly Rubinstein-Taybi – but further genetic testing is required to confirm. It was also discovered in January 2016 that she is profoundly deaf. Left eye convergent strabismus, right eye dominant, wears glasses.
Listed: Feb 2018
February 2020 update: Penny can take steps with assistance and uses a gait trainer to walk around. Penny is a big fan of sensory play! She will sit beside a tub of water and swirl the water round and round. Penny also enjoys finding objects hidden in sensory containers. She slowly drags her hands through the container finding the objects hidden beneath the surface. Penny is a friendly child who loves people so much! When someone walks into the room and approaches her, she gets so excited. Penny will flap her arms and grin from ear to ear, giggling the whole time. Penny loves being held and squeezed tightly. She also enjoys having her face cupped between her or someone else’s hands. Penny finds a lot of amusement in holding people’s hands and guiding them over a light source to create shadows which she intently watches as they bend and flow. Sweet Penny loves deeply and it is very easy to love her right back.