Boy, Age: 5
Region: Eastern Europe
Primary Diagnosis: Congenital Heart Defect, Hydrocephalus
State after intraventricular hemorrhage. Internal hydrocephaly: VPA inserted. Cortical blindness. Congenital heart abnormality: type 2 atrial septal defect (persisting foramen ovale). Hypospadias. Bilateral cryptorchidism. Delayed physical development and severely delayed psychomotor development.
Listed: May 2022
Available to Large Families, Available to Older Parents, Available to Single Fathers, Available to Single Mothers, MACC Availability 2023
Nevan was born prematurely, to a young mother. He had a difficult neonatal period, with use of mechanical ventilation.
The child has a severe impairment of the central nervous system: posthemorrhagic internal hydrocephaly; a VPA shut was inserted in April 2018; later it was twice revised. The child is in a stationed impaired state of health. ECG: Persisting foramen ovale with positive natural evolution; no therapy needed.
The child has a severe impairment of the central nervous system: posthemorrhagic internal hydrocephaly; a VPA shut was inserted in April 2018; later it was twice revised. The child is in a stationed impaired state of health. ECG: Persisting foramen ovale with positive natural evolution; no therapy needed.
Nevan will need observation by a neurosurgeon, pediatric cardiologist; he needs specialized care, physical therapy and kinesiotherapy.
The child turns his head towards sounds. When placed on his side by adults and with help, he can turn the lower part of his body and flip from back to front and vice versa. When awake he is placed in a baby chair. Coefficient of development: 8.
The boy laughs loudly when teased; he is happy when hearing the voice of a known to him adult that he likes. He reacts to the tone of the voice of the person speaking to him. He grasps a toy but does not manipulate with it. He falls easily asleep and sleeps well. He is fed with a bottle. He is calm when being changed and when being bathed.
