Boy, born March 2009

FAS; complex developmental disorder and autism features, CP ataxic form; mixed developmental disorder, low height, hypermetropic astigmatism, functional heart murmur

Listed: May 21, 2012

From a family who met him in 2015: “Zeke is seriously one smart cookie!! He is walking GREAT now and was even jumping from a play mattress to join in the fun. He actually knows a few words in English as well, and I taught him to fist bump (and blow it up, ha ha) when I came in and he remembered it when I left and hour and a half later. I was blown away by his attention to detail in the books we were reading — he will excel academically. He was very attached to the American volunteer who is regularly in his groupa — all of the kids love her and are lucky to have her attention.”

From a family who met him in Summer 2015:
He appears to be of normal size for his age.  He He can focus for pretty significant amounts of time if the activity interests him. We are now able to sit and flip through entire books together, taking time to figure out what is going on from the pictures on each page. He has become very good at identifying the characters’ emotions from their facial expressions and makes reasonable guesses as to why they feel how they do.

He is pretty stable when sitting. He’s not falling out of chairs or off of benches or anything. Sure, he falls sometimes when he runs, but the kid is running! He has been walking and running for a few years now; the boy dances!

He might be slightly cognitively delayed for his age, but he is a very quick learner and strikes me as very intelligent. We have as normal of conversations as I imagine are possible with a 6 year old. He has impressed me recently with some clever remarks that are evidence of him thinking quickly and independently, rather than just just parroting what his caretakers say. His emotional control has improved vastly. He just needs a calm presence when frustrated. For example, we were working with buttons the other day, and when he started getting frustrated and saying he couldn’t do it, I just calmly told him that it’s hard, that he’s really close, and that he’s totally capable, and he was able to complete the task.

Although he does still enjoy some solitary games, he’s becoming a lot more social. He always takes me around the yard to introduce me to people and knows everyone by name.  He’s a pretty calm, happy guy, especially when there are calm, warm adults to help him get over little obstacles.

December 2014 UPDATE:   A U.S. mom had these observations about Zeke: He’s a doll! He’s cheerful, helpful, and very friendly. Every time we entered the room he was the first to greet us (Labas!!). Zeke has a little issue with following directions. I don’t know him well enough to be able to distinguish if it was a willful issue or a cognitive issue. As far as I know he has FAS and possibly very mild CP effecting his legs/ Achilles’ tendon. Zeke is a very likable kiddo!

Update from a volunteer who spent extensive time with him:
I met Zeke in the summer of 2010 while volunteering; in the years that I’ve known him, Zeke has made considerable physical, cognitive and emotional progress, and has become an active, curious, quirky, good-natured, and nurturing young boy. As his physical abilities have improved, he has become much more independent, both dressing and feeding himself. He does, however, need some direction and encouragement with these endeavors. Zeke best completes such tasks when given positive reinforcement and clear sequence of events to follow. For example, if simply given a pile of clothes, he often has trouble focusing his attention. It is more effective to ask him what he needs to do first, second, and third, and to tell him how quick/good he is when he has completed a step in the sequence. If he is feeling unmotivated, it can be helpful to tap into his nurturing side (ex. “Put your socks on! Your feet will get cold and wonder why you didn’t dress them!”) or to incentivize him with tickling—his favorite activity in the world.

In the past year, Zeke has become an avid performer, bravely singing in dancing during musical lessons and performances in the children’s home. Even half a year ago, he would need a bit of coaxing to get up and join the other children in song. During this year’s holiday show, however, when the music teacher asked for volunteers to stand up and perform, Zeke was the first to rise to the challenge. He also really enjoys musical children’s films, often performing the routines from memory during playtime. One of his favorite toys is a little piano with a microphone into which he sings his favorite songs.

Zeke has a few other favorite games, which mostly revolve around caretaking and repetition. For instance, following the examples of the caretakers, he feeds, bathes and swaddles dolls, making sure to lovingly and carefully execute these tasks in the correct order each time; when waiting for the thermometer to show the doll’s temperature, he pets her head, rocking her back and forth. Another current favorite of his is petting me and telling me not to cry in a concerned, soft voice. After establishing that he has comforted me, he gets in his toy car, wishes me all the best, drives around the room, and comes back to take care of me again. Zeke has also grown to love animals, and when given the chance to be with a dog or horse, he always pets them, sweetly telling the animals that they are good and that he loves them.

Zeke is an incredibly nurturing, loving child, and delights in physical affection. He loves to be petted and hugged, and gladly returns the favor. He is very concerned with maintaining good relationships with the adults in his life and is sensitive to admonition. If he is beyond the point of being motivated by positive reinforcement, a serious look and stern voice usually suffice. If he sees that he has accidentally hurt me, he becomes quiet and sad, and seeks reassurance that everything is ok. Zeke is less sensitive with respect to the children around him, as he is possessive of his favorite toys and the other children habitually seek what another has. In the last few months, however, Zeke has made a great deal of progress expressing his emotions and restraining himself when he gets upset. Whereas he would previously go after the child to repossess his toy, I have consistently responded by wrapping an arm around him, telling him that we will all gladly help him if he calmly explains to us what is wrong, and he is now much better at seeking our help and articulating his feelings. When he is agitated, it’s best to take a calm, light-hearted approach to ease the tension; he thinks it’s hilarious when adults copy his little squeals and shenanigans, so he usually laughs if I playfully copy his whining, which gets him out of his rut and allows us to calmly seek a solution.

All in all, Zeke is a joyful, enthusiastic, loving child who responds to physical affection, positive reinforcement, and clearly established expectations. He has a friendly attitude towards new people, and seeks a great deal of hugs from the adults in his life. I have the utmost confidence that with patient, gentle and loving guidance, Zeke will continue to grow into a capable, kind young man who will enrich the lives of those around him. In the five years that I’ve spent with Zeke, he has certainly filled my life with more love than I could have possibly imagined.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Boy, born 2010

Leukoma Cornea (Blindness in both eyes) & Developmental Delays

T-G

 

Armand entered foster care due to inadequate care and parental skills.  He has resided in care since February 2011.

Armand likes to be spoken to and laughs when his name is called. He laughs and smiles when caregivers touch his face and talk to him.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Boy, born December 2009

Developmental Delays, feeding issues, failure to thrive, left congenital ptosis, laryngomalacia and supraglotoplasty

T-GLAD

 

Talbot entered foster care as a result of being removed from his home due to his parent’s inability to provide a safe and stable, loving home for him.  He has resided with a foster family since July 2011.  He is growing and developing in his foster family’s care.

Talbot likes toys that make sound.  When he hears music, he dances and laughs out-loud.  He enjoys taking walks with his foster family.  He is able to say Thank you, Auntie, Mama, and Papa.

Talbot was diagnosed at a few months of age as  having feeding issues, failure to thrive, left congenital ptosis, laryngomalacia and supraglotoplasty. According to a October 2011 developmental report, he was delayed in cognition, language, & gross and fine motor skills.  He attends weekly occupational and language therapy classes, showing improvement in the past few months.  He is able to walk on his own and at the time of the assessment, he was working on climbing stairs.  His appetite has picked up and he enjoys eating noodles and biscuits among other foods.

Talbot will do well in a family who is patient, has time to work on developmental growth through play and exploration, and able to access early intervention services.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Guardian Angel

Boy, born Dec 2008
Eric has arthrogryposis and compensated hydrocephalus. He has had a surgical repair of spina bifada.

Listed: Jan 2012

Eric is a smiley little fellow who likes to feel his caretaker’s heartbeat or pulse, because it comforts him. He would be a wonderful little brother in a household of older children.

Overall, he is healthy and would do well in a family without smaller children. His upper body is quite strong and he has full use of his hands, fingers and arms, but he has little control or movement in his lower limbs and they are significantly smaller than his upper body. He can squeeze very tightly with his hands, and reach a full arm’s length with no problems even though his resting position is the one you see in the pictures. He does not talk, according to the caretakers but does make sounds to communicate. Cognitively, he has significant delays due to his history of spina bifida and hydrocephalus. He is very much still an infant in many ways.

He may have a sister a few years older in a different region who possibly could also be available for adoption or he could be adopted separately. She also has special needs.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Boy, Born July, 2010
PRC
Blind and cleft palate

Listed: Nov 2011

Update 2017:  Warren’s Cleft palate was repaired in 2013.  He is severely delayed — he doesn’t walk, talk, or play with other children.  At 7 years old, he is only 19 pounds.  He desperately needs the better care a family can bring.

When he was younger, he was in a private facility and was doing much better. Warren needs a family that has experience with vision issues, access to appropriate resources for vision impaired children and cleft lip and palate services and resources, and understands the social impact of blindness.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Boy, Born October 2007
T-A

Moderate Intellectual Deficiency and Congenital Cardio Disease

From the time that Merlin was born until January 2008, he was hospitalized due to his poor health condition at birth. From January 2008 to January 2010, Merlin lived with his birth mother, who was his primary caregiver.  He presently resides in an orphanage.

Merlin was born at 35 weeks gestation. After birth, he was diagnosed with ventricular and atrial septal defect and patent ductus arteriosus (large). He received several operations. At the age of 2 years, Merlin received frenulum incision due to his speech development delay. He has since been evaluated for speech, cognitive, and motor development. He began receiving therapy for his delays and was evaluated as having moderate intellectual deficiency. He continues to receive therapy while residing in the orphanage. Physically, Merlin has a wide nasal bridge, eyelids slanting downwards, big thumbs, wide gaps between his fingers, and conditions of short attention, motion disharmony, and blurred pronunciation.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Guardian AngelBoy, born May 2007
H-C
Cerebral palsy, seizures

Listed: July 21, 2011

-Josiah-

From someone who works with him:  We have had the privilege of caring for Josiah for 3 years. He is the oldest child in our care and has been with us longer than any other child. Josiah was abandoned at a nearby hospital when he was 1. Josiah has cerebral palsy and requires special care and attention. He has limited control over his movement and needs support when sitting. For 3 years, our nannies and staff have cared for Josiah, fed him and bathed him. Ask any person who has cared for Josiah though and they will say that they are the one who was blessed.

When you are with Josiah, it is clear that God’s love resides in Josiah. Josiah can’t talk, but he loves to smile and interact with anyone who will talk to him. Josiah cannot sing like most of us, but each day during nanny prayer and singing Josiah joins in with a big smile. Our deep desire is for Josiah to join his forever family through adoption. We have had difficulty finding that family, but we know that God has a plan for Josiah . We also know that where ever he goes, Josiah will be a blessing as his loved ones bless and care for him.

Update Jan 2015:  Josiah has been with us longer than any other child and is waiting for his forever family. He was abandoned at a nearby hospital when he was a year old. Josiah has cerebral palsy. He can be very interactive and seems to comprehend what is being said to him. He does have seizures that are being controlled with medication. He loves when people sing songs with him. Josiah is a very happy and loving boy. He is always full of smiles.

Josiah can hold his head up, and is practicing learning how to sit, although he has not yet mastered this skill on his own. He prefers the tripod position while someone supports his efforts. Josiah is very strong and his muscles are often tight; he is receiving therapy to help him relax and control his muscles better. Josiah is nonverbal, but can still express several of his needs very well; he will cry if he wants attention and will happily reward you with a smile when you talk with or sing to him.  Our deep desire is for Josiah to join his forever family through adoption. We have had difficulty finding that family, but we know that God has a plan for Josiah . We also know that where ever he goes, Josiah will be a blessing as his loved ones bless and care for him.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.  For more information, visit: Other Angels Older Child Grant ***

-Peter-Boy, born December 2007
H-C
Cerebral palsy, sickle cell anemia, kerion

Photos available.

From someone who works with him:
Resiliency only begins to describe Peter! This young boy has gone through so much medically, yet still finds the strength to smile through it all. No matter what, rubbing his head will produce a sweet smile of pure contentment and a look of peace in his eyes! Peter certainly has faced more than his share of medical challenges these past months. For quite some time, he was experiencing both scalp and skin issues that were resistant to seemingly all conventional treatments. After a long course of steroids and special mixtures of creams, Peter has finally experienced some relief and his skin is in the process of healing. While he has a history of seizures and is positive for sickle cell, both of those conditions are wonderfully under control with daily medications. Peter enjoys receiving special care and attention and really responds well to being able to attach to certain people he can trust.

Update Jan 2015:  Peter has lived with us for the past several years. He has cerebral palsy and sickle cell anemia. He cannot sit independently, but he can hold his head up in his chair or during tummy time. He has a skin condition called, “kerion,” but this is usually fairly well controlled with special creams and shampoos. He has frequent muscle spasms and is on medication for seizures. In the past several months, we have seen Peter learn to express himself more, and are seeing more of his adorable smile! Peter recently had a g-tube placed and is now getting fed through this. He can also eat soft foods by mouth and these are offered to him regularly. Peter enjoys receiving special care and attention and really responds well to being able to attach to certain people he can trust. His favorite nanny tells us that he calls her, “grandma”.

Update Feb 2018: “Peter” is so alert and aware of everything going on around him. He is great at visual tracking and watches everyone carefully. He’s also starting to use eye gaze to communicate between choices and his new special education teacher has learned through this method that he knows his letters and numbers. He can’t control his movements well but can sometimes communicate on the yes/no board using eye gaze. Even though he is one of the oldest boys in the house, he still enjoys some cuddle time and will really relax if we hold him in the right position.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Harold2Boy, born May 2009

Harold

Listed: May 2011

This beautiful boy has hydrocephalus.   He’s already three years old, and would obviously benefit from excellent medical care.

Update March 2014: 
Harold is very responsive and would copy my facial expressions. If I smiled, he smiled back…he would stick out his tongue when I did too. He would grasp my hand….so very sweet.

Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Boy, Born December 2006

HIV+, ADHD

From his caregivers:  good results of blood tests; gets anti-retroviral therapy.

Character: hyperactive, restless, jumpy, sometimes disruptive behaved

Update Nov 2011:  

Louis is a very active and communicative boy. He likes attention, he really needs a family. Just look at his smile. He is very sweet.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Boy, Born February 2007

Howell is a sweet blonde haired boy who was born with CP.  He is cognitively and physically delayed, and will really benefit from therapy and a loving family.

More photos available.

From his medical records:  spastic paraparesis with the dysfunction of the function of the pelvc organs. Deep mental delay, hypoplasia of the right testicle.

Howell is able to control his bowels, but not his urine.

May be available with Thomas.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Boy, Born May 2007

From his medical records:  Perinatal hypoxicischemic damage of the CNS. Atrophy of the cerebral cortex.  Cord was wrapped around his neck at birth, Jake has CP as a result.

Travis, Troy, Jake, Nathan, Arnold, Garrett, Sammy, Harold, Harriet, Jordan and Russ were all listed together and may still be in the same region, if not orphanage.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Presleypresley-2017-croppedBoy, Born March 2008
Listed: February 22, 2011

Past leukemia, delay of psychological and motor development, skull deformation (almost flat on the back), congenital isotropy of both eyes (crossed eyes)

NEW PIC January 2017

What a CUTIE!   Presley is a sweet boy with blonde hair and bright blue eyes.  He is a very happy and affectionate child.

Presley will benefit so greatly from having a loving family!  More photos available.

Updated Nov 2013:
He is a very sweet child. Seemed to listen to instructions well. Participated in group activities (like dance and singing). Longing for attention, affection, and stimulation.  He does not currently have leukemia; but he has mental delays, and his head is very flat.

Presley may be available with Chase, Darina, and Haven.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***

Chase (1)Guardian AngelBoy, Born July 2007

Chase is a handsome Roma boy with dark hair, olive skin and giant brown eyes.   He needs a loving family of his own to bring him out of his shell and to finally feel comfortable and safe.

From his medical records:  obvious mental delay, poor understanding, almost does not speak, nervous, not even-tempered.

Chase may be available with Darina, Presley and Haven.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***

Boy, Born August  2007Guardian Angel

From his medical records:  congenital anomaly of the brain, internal hydrocephalus, spastic tetraparesis, convergent strabismus.

Does not speak, but smiles a lot.

May be available with Howell.

2015

2015

Boy, Born May 2007

From his medical records: symptomatic epilepsy G40.1 Other disorders of psychological development. F88.0; Tuberous sclerosis. Q85.1 Other ill-defined heart diseases. I51.8 Iron deficiency anaemia, unspecified D50.9 Hypermetropia H52.0 Convergent concomitant strabismus H50.0 Cytomegaloviral disease, unspecified. B25.9  Probable FAS.

Emerson finally available again!  He’s waited SO long.

Listed: Sept 6, 2010

NEW VIDEO!!  Emerson is such a handsome and active boy with an awesome smile! He needs a family!

Shareable video link: https://youtu.be/DzK684ijYok

*** He can be adopted with Jessica and/or Kristopher if a family is interested and approved in their home study. ***

Emerson is growing up so fast! He is so tall now! He is a sweet, blonde haired, blue eyed boy waiting for his forever family. He is quite self sufficient and a happy child.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.  For more information, visit: Other Angels Older Child Grant ***

BOY, born May 2007
This handsome young man, with dark hair and dark eyes, was born with a rare genetic condition called Stickler Syndrome.  His medical records also indicate microcephaly, a common symptom of SS.

Listed: June 3, 2010

Update May 2016: Jared has been transferred a while ago from his baby orphanage.

Individuals with Stickler syndrome experience a range of signs and symptoms. Some people have no signs and symptoms; others have some or all of the features described below. In addition, each feature of this syndrome may vary from subtle to severe.

A characteristic feature of Stickler syndrome is a somewhat flattened facial appearance. This is caused by underdeveloped bones in the middle of the face, including the cheekbones and the bridge of the nose. A particular group of physical features, called the Pierre Robin sequence, is common in children with Stickler syndrome. Robin sequence includes a U-shaped or sometimes V-shaped cleft palate (an opening in the roof of the mouth) with a tongue that is too large for the space formed by the small lower jaw. Children with a cleft palate are also prone to ear infections and occasionally swallowing difficulties.

Many people with Stickler syndrome are very nearsighted (described as having high myopia) because of the shape of the eye. People with eye involvement are prone to increased pressure within the eye (ocular hypertension) which could lead to glaucoma and tearing or detachment of the light-sensitive retina of the eye (retinal detachment). Cataract may also present as an ocular complication associated with Stickler’s Syndrome. The jelly-like substance within the eye (the vitreous humour) has a distinctive appearance in the types of Stickler syndrome associated with the COL2A1 and COL11A1 genes. As a result regular appointments to a specialist ophthalmologist are advised. The type of Stickler syndrome associated with the COL11A2 gene does not affect the eye.

People with this syndrome have problems that affect things other than the eyes and ears. Arthritis, abnormality to ends of long bones, vertebrae abnormality, curvature of the spine, scoliosis, joint pain, and double jointedness are all problems that can occur in the bones and joints. Physical characteristics of people with Stickler can include flat cheeks, flat nasal bridge, small upper jaw, pronounced upper lip groove, small lower jaw, and palate abnormalities, these tend to lessen with age and normal growth and palate abnormalities can be treated with routine surgery.

Another sign of Stickler syndrome is mild to severe hearing loss that, for some people, may be progressive (see hearing loss with craniofacial syndromes). The joints of affected children and young adults may be very flexible (hypermobile). Arthritis often appears at an early age and worsens as a person gets older. Learning difficulties, not intelligence, can also occur because of hearing and sight impairments if the school is not informed and the student is not assisted within the learning environment.

Stickler syndrome is thought to be associated with an increased incidence of mitral valve prolapse of the heart, although no definitive research supports this.

Jared may be available with Nate.

*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds.
For more information, visit: Other Angels Older Child Grant ***