Boy, born 2014
Bullous ichthyosiform erythroderma
Additional photos and video available.
Tristan has a severe skin condition. Look at that smile in spite of what must be very painful and itchy sores. A report from August 2018 says the following:
Tristan has a pair of bright eyes. He has a smile, he is so shy and cute when he laughs. He loves clean. Although he is young, he always spreads out the little towel, puts the bowel and spoon on the towel and has a meal carefully each time when it’s time for a meal. He knows to clean his face and mouth after a meal, and tells the caretaker that he eats over. When the caretaker praises him “well done”, he shows his happy smile. He likes all kinds of snacks and his favorite foods are ships and chocolates; he also loves all kinds of fruits, such as apple and pear. His favorite fruits are bananas. He is fond of watching cartoon; sometimes when there is familiar music from TV, he knows to sing follow it. His favorite cartoon is Boonie Bears. He sleeps alone in his cradle.
Tristan can go upstairs and downstairs without help, can jump off floor with both feet, can go upstairs one foot per step, can hold a pen with right hand, can hold a pen with full hand and scribbles on the book. He also can grasp a small ball with his hand, throw the ball away. He knows red color, count numerals of 1-5. He is fond of playing with toys. He is happiest when he is playing with toys. Usually he can play with toys alone over 10 minutes. He likes all kinds of toys. He can take a toy with his hand and plays with it, he puts it back after he doesn’t play; he can put on and take off socks and shoes. Due to his skin, he is difficulty in putting on and taking off clothes.
He can say some phrases; he is very clever and is not afraid of strangers. Each day, he sees that the caretaker goes to work or off the work, he says “good morning, mom” “goodbye, mom” on his own initiative. When he sees the repair men in the institute, he also says hello to them with open arms. The staffs like him very much. He knows the adult’s words and he also can communicate with the adult. He states out his needs on his own initiative and makes the caretaker to know his meanings. Sometimes we ask him “how old are you?”, he answers “4 years old”. In the group, he knows the names of all children, like a big brother; even if the children change their beds each other, he also knows to state out their names. He often plays with children together in the group. Sometimes he is naughty and grabs the toy with other children. He enjoys that he is praised by the adult, he is so happy at that time. Sometimes he is naughty, he shows his unhappiness and grievance when is criticized by the caretaker.
Please won’t a family adopt this sweetie and help make his life with this skin condition as comfortable as possible as he continues to grow and thrive!