Boy, born 2013
Jonah is a joy to be around. His smile and laughter lights up the room, especially when he really gets going. He loves to cuddle, get kisses, and to be included on what is going on around him. He has some breathing issues and breathes very loudly but does not regularly use any thing extra to help him breathe. Jonah has struggled with gaining weight his whole life, but lately has been doing better. In December of 2017 he had g-tube surgery and in December of 2018 he had a nissen to help prevent him from vomiting. He is unable to tolerate large amounts of food at a time so he is continuously fed with a feeding pump through his g-tube with a medical formula. Now that he has a nissen he is able to keep more inside him rather than vomiting it back out. Jonah has very high tone but is on medication to help with that as well as goes to therapy multiple times a week for stretching, massage, exercises, and time in the stander.
Jonah can hold his head up on his own, but isn’t steady and will often fall backwards or forwards. He can recover from this on his own but often needs encouragement and occasionally a little help. Jonah can roll from his front to his back or from a side to his back or his front, but cannot yet turn 360 degrees without help. He can also scoot around a little bit whether he is on his back or his stomach. On his stomach he can lift his head up to look around, but does not do so for long periods of time. Jonah needs help keeping his arms in position for supporting his upper body on his elbows. He cannot yet fully sit on his own, but will do most of the work when in a sitting position. Jonah can hold things in his hands, but does not do so for very long. He currently uses a special tomato chair for sitting as well as his wheelchair when needing to be mobile.
Jonah has been going to preschool for just over a year and has been working on communicating and making more and more choices. He can use a yes/no board or make choices between two things by touching the item or card or by looking in the direction of what he wants. He is learning to read just like most five and a half year olds are.
Jonah needs a family who can advocate for his care and love him fiercely. He needs access to more doctors than he has available in the country he is in to address and test some of his needs that cannot be done here.