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Because every family deserves the blessing of a child with Down Syndrome... |
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Travis
Boy, born November 2006
Travis is listed as having congenital defects of the Central Nervous System (CNS). We don’t have additional information yet on how that affects him overall.
From a family who met him in 2012:
When I saw Travis my heart completely broke. I remembered his picture where he was sitting up, and it was obvious that in the time since that picture was taken his health and any ability he once had had deteriorated. He laid nearly lifeless, covered with blankets (mind you it is very hot in the room). I only have the one picture of him because his position never changed. He rarely moved and seemed to be asleep all the time. The only time I ever saw him move he just rocking his head from side to side very slowly as he grinded his teeth…and grinded…and grinded. My instant feeling was that Travis had given up on life, and it breaks my heart.
Every time I saw him there was vomit on the blanket next to his mouth. I suspect it is due to improper feeding. Like Janna, Travis is living at the orphanage on borrowed time.
Please friends, let’s not let Travis give up on life. I don’t know what his future ability would be in a family but even if it never changed isn’t he deserving of the love of a family? Please…someone…rescue Travis.
Jake
From his medical records: Perinatal hypoxic-ischemic damage of the CNS. Atrophy of the cerebral cortex. Cord was wrapped around his neck at birth, Jake has CP as a result.
Troy
mild mental delays
Troy has been transferred to the local Internat. He is listed as having a mild mental delay. (His eyes look odd here because of the red eye reduction used on the photograph.)
Troy does not speak, but understands speech addressed to him.
From a family who met him in 2012:
The profile says he is non-verbal and that is true, he did not talk at all while I was there. However he was extremely gentle, kind, and had a very sweet demeanor. I took bubbles one day and all the kids mobbed me wanting to play, Troy just stood there patiently smiling at me and waiting his turn. I don’t think I ever saw him without a smile on his face. He would sit next to me at the table and would stare very sweetly at me and when I would make eye contact he would put his arms out to give me a hug. I do not know about his cognitive ability because I just did not get to spend enough time with him but he did understand the instructions he was given by his teacher and care taker at the boarding school with no problems, obeying them and following all their instructions (with a smile on his face). Physically he had no problems. I do not know if his lack of speech is due to trauma or an actual inability to form words. I will absolutely never forget how gentle and loving he was, he lives to be hugged and he loved what little one-on-one attention I was able to give him. He was so patient and kind to the other kids. A family would be blessed to have this precious boy as their son!
Nathan
This handsome fellow has a mild mental delay. Can't you just imagine him in a family with a bunch of siblings to chase around outside? He's clearly not a fan of stopping his play for picture time
Arnold
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
This little cutie does not look happy about posing for the camera!
Arnold is said to have “lower paraparesis” – which may be anything from CP affecting his lower limbs to paralysis.
Jordan
Jordan is waving hello!
He has Down syndrome, and he seems very tiny for his age. The other picture we have of him, he is lying down — we have no other information about him, but it is possible he is not yet walking.
This sweet boy would thrive in a family!
Russ
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
Russ’s profile says “goloproentsephaliy” which is unclear, other than there’s some condition with his brain. It’s unclear if it’s a physical or mental condition.
It has been suggested that his ‘goloproentsephaliy’ may actually be holoprosencephaly like Catherine 9HA, but it would be a milder form than hers i.e. lobar or semi-lobar holoprosencephaly, rather than alobar.
Janna
Girl, born January 2005
Look at Janna’s long lovely fingers!
Janna has a congential anomaly of the brain. Both pictures we have of her she is lying down — she desperately needs a family to rescue her. Once she is transferred, she will likely be left in bed for the rest of her days.
There are many children in this orphanage who could be adopted together.
FACING IMMINENT TRANSFER!
From a family who met her in 2012:
I did not see her moving much but she would arch her back occasionally and make a few noises. She desperately wanted to move though. Desperately! She was the only child I ever saw that was given toys (I would suspect it was because the other kids would likely throw them out of the crib but Janna would keep them in the crib and play with them). The fact that she would play purposefully with toys speaks volumes about her cognitive ability. She would dangle the toys over her face and wiggle them around. She could move all of her limbs but did not seem to have enough strength to sit up on her own (although she almost did it). I do not know if she can roll herself over but when she did move she seemed to have more trunk and upper body strength then I expected. She was given one opportunity to sit up and be on her tummy and SHE LOVED IT! She reached for toys and enjoyed looking at herself in the mirror.
If I had to guess (and again it’s just a guess) I would guess that she has hydrocephalus and seizures. If that is true, I believe the care takers are hesitant to touch or move her. They may not understand hydrocephalus and seizures and are afraid to trigger one.
What touched me the most was every time I would rub her head or hands she looked at me like it was the most soothing thing that had ever happened to her – I will never forget that look. It was as if years of horrible memories were released and she soaked up the gentle attention.
My heart is absolutely broken for her… Janna is 7 years old and is living at the orphanage on borrowed time. It is believed that she will be transferred to a mental institution in September 2012. However if a family commits to adopt her the orphanage director may keep her at the orphanage until they come. I cannot even bring myself to think of her life in a mental institution, she is far too sweet and too gentle to deal with what she would experience. Please…someone…rescue Janna
Harriet
Girl, born March 2007
URGENT: FACING IMMINENT TRANSFER to the INSTITUTION
Harriet has a cleft hard and soft palate. She has many facial features of fetal alcohol syndrome, please research this condition as a preparation for her needs. There are several children in this orphanage who could be adopted together!
From an adoptive family who visited with her in Jan 2012:
Harold
This beautiful boy has hydrocephaly. He’s already three years old, and would obvsiously benefit from excellent medical care.
























Boy, born August 2005


