Boy, born 2004
Arthrogryposis of legs
Ian has total control and use of his hands, good flexibility and good fine motor skills. His arms also don’t seem affected by the arthrogryposis, and he has full range of shoulder motion. He walks with his legs stiff and unbending, balancing on one side and then the other as he swings his body around to move forward. He has very little, if any, flexibility in his knees.
From the waist up, Ian is about the size of a normal 10yo. His head, arms, hands, and shoulder width are all very comparable to a typical American 10yo. However, his legs are very thin and very short, about the length of a 4yo, if even that, and his feet are the size of a toddler’s. As a result of the proportion disparity, his hands when down at his side extend to his knees. He does not have club feet.
From a family who met him in late 2014:
Ian is a wonderful, wonderful child! He will do fabulously in a family. He always has a smile on his face and is happy to see us each day when we visit our son. When we arrive, he always makes eye contact with me and smiles his huge, infectious smile after I say hello. Ian isn’t all over us begging for our attention the way some of the children are. His personality is more reserved than that, and he absolutely blossoms when we talk to him or pay him any attention. He’s very bright and attends a regular school. He is polite and friendly. He played important roles in both the New Year’s and the Christmas pageants, and he danced and moved and smiled and sang along with the other kids — so cute! Ian recited his lines so well!
While Ian’s walking is slow, he is fully mobile and doesn’t let his physical limitations stop him from doing what he wants to do. From what I can tell, Ian takes care of all of his personal needs without help. The orphanage is set up in a recurring series of half-floors, so there are are staircases all over the orphanage. Ian holds on to the handrails and moves slowly but does handle the stairs all on his own.