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8 search results for: arthrogryposis


CALEB for the Beck family — TX

We are Jaime and Gary and we hope that our story can help you understand why we have chosen the wonderful yet difficult path of adoption. We are the parents to three internationally adopted children from China, Shawn 8, Ryan 5, and Robin 3. We are often asked why we chose to adopt internationally rather than have our own biological children. We answer them how Vernon Pierce, a pastor and foster parent, does. He describes the mirrors between adoption and Gods love. He says “I like to tell people that we were the people in the back of the filing cabinet with the red stamp saying: Do not adopt. You look at the file on humanity and it says: Prone to rejection, prone to running away, prone to disobedience. There is no reason why God should have loved us and yet God did love us. He set his love upon us and it was a redemptive love to reconcile us to himself, to restore us to himself and restoring a people to himself. We were meant to be part of the family of God. We fell away and God still brings us back to himself”. When we adopt, we willing to choose the “red stamps” of life; those who are hurt, both physically and emotionally. We as parents set our love upon them and watch as Gods redemptive and restorative power work through us to directly change our children. It’s a truly powerful and miraculous thing to watch. It is also why we believe that the most profound thing we can impart to our children is the love of Christ. While we set our love upon our children we also disciple them with this message, that it is only Jesus who can save and change a heart from the inside.

In 2012 we started our journey with the adoption of a 2-year-old boy, Shawn, born with a cleft lip/palate. We followed his adoption up with two others in 2016 and 2017. Ryan was adopted at 3 and was diagnosed with Lamb-Shaffer Syndrome, a rare genetic deletion causing intellectual disabilities, speech impairments, and ataxic muscle movements. Little Robin arrived home at the age of one. She was diagnosed with cleft lip/palate, a heart defect, and hearing loss. As with all institutionalized children, their early childhood trauma and fear manifests in various ways. We meet them where they are, set our love upon them and trust God to redeem and restore the broken, just as Christ does for us.

Each one of our children has their own individual stories. Yet, they all share a similar heritage and can relate to each other through their medical needs. While they recognize the others struggles or disabilities they don’t capitalize on them but overlook them; the abled helping the disabled, the better signer helping the non-verbal to communicate more effectively, playing as a sibling unit despite ability.
We are seeking to adopt Caleb, a 7-year-old with arthrogryposis. We had the privilege of speaking with Caleb’s American foster family and gaining insight into his personality. His foster parents describe Caleb as a peacemaker with a sweet personality. He tries to find ways to accomplish tasks on his own despite his physical disability. Caleb also lives with foster siblings that have a variety of needs, ranging from Trisomy 21, Cerebral Palsy, Autism, and Clefts. His foster parents feel that Caleb would thrive as a middle brother who could not only look up to his older brother but also be a helper to his younger siblings. Caleb is receiving excellent care at his healing home but cannot reach his full potential there. He has already had seven surgeries and will require several more to achieve greater range of motion in his extremities. We have a translated letter written by Caleb expressing his desire to be adopted. You can also hear the sadness in his voice as he feels overlooked while he watches all of his friends be adopted.
We are humbled that you have taken the time to read our profile and thank you as you consider donating to help us bring Caleb home!


Sawyer #4-5

Age 10; born 2010
Arthrogryposis with knee joint contractures, bilateral club foot, Hypotrophy

Sawyer is able to move around the room by scooting on his bottom. He can talk in sentences, but his articulation is not always clear. He plays with toys, responds when spoken to, follows simple directions, and assists with self-help tasks such as dressing/undressing.
Photo and videos from March 2016 are available through the agency.

Listed, April 2016; Update below, April 2019:
Sawyer has spent his entire life in a large orphanage, where his experiences and interactions have been limited. He’s been attending school and working with a speech therapist for the past 2 years and this has resulted in an increase in all skill areas. Sawyer can talk in simple sentences and answer questions. His articulation is poor, but he’s made improvements with the help of a speech therapist. He can count to 10, identify his body parts, and answer basic questions such as his name and age. He demonstrates imaginative play with toys. His motor skills are delayed due to his diagnosis. He uses a wheelchair for mobility and will also scoot around the room on his bottom. He can feed himself. He can take his shoes and socks off independently. He is described as very social. He works hard during academic instruction. He enjoys interacting with both peers and adults. It is believed that his cognitive delays are due to the environment he has lived in and lack of exposure.
*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***


Polka Fundraising for O’Briens


Polka fans rally around the O’Brien family as they work to adopt a third child into their home.

Fans of many different polka groups are quite possibly familiar with CeCe (age 8) and Adhu (age 6). Both Cece and Adhu were adopted by Paula and Scott O’Brien. These two youngsters are often seen at polka shows; dancing, clapping, and singing along. Their polka fandom does not stop there however, the O’brien family follows several local and national polka acts. The O’Briens have given these two children, from entirely different parts of the world, a loving family and home. Both kids were classified with special needs, as many children up for adoption internationally are. Paula and Scott possess a special heart for these kids. Cecilia, who was adopted from Kazakhstan in 2009 was classified as anemic. Adhu, who the O’Briens brought home from India in 2015, has severe kypho-scoliosis. This is condition dealing with Adhu’s spine, an issue that requires a lot of attention and special care.

After Adhu’s adoption from India in 2015, the O’Briens thought their family was complete. However, a child in need was brought to their attention and the O’Briens felt compelled to step out in faith once again and offer this child a home. Mickey is to be adopted from China. It is believed that the three-year-old suffers from arthrogryposis. This is a condition dealing with joint contractures in which some joints do not move properly or can even be stuck in a single position. It is the O’Brien family’s desire to bring the child home, get him the treatment he needs, and include him in their loving family.
The O’Briens are a family. When CeCe and Adhu became part of that family; they instantly had grandparents, aunt’s and uncles, and cousins. The polka community is a family as well. And as a family, we can help raise the money needed to make this new adoption possible. We’ve seen the love and values that Paula and Scott give their children and we cannot wait to meet Mickey and see him become part of their family and ours. We know that Mickey will make a great addition, dancing the polka and singing along with the rest of his family.
$5,597.97 has been donated by POLKA FANS for the O’Brien’s adoption!
A list of donors will be provided to the O’Brien family. If you would prefer to donate anonymously, please email



Boy, born 2013
Multiple congenital arthrogryposis, internal hydrocephalus, open oval window

updated pics Jan 2015 and medical info:
Multiple congenital arthrogryposis, thymic hypoplasia, hypoplasia of abdominal wall muscles, crossed eyes, additional chord in the heart.

He had surgery. He is developing well. Smart boy. Needs out asap.

From a family that met him 11/15:
“Mathis” (he will be 3 years old in winter) also has delayed speech and mental delay. He did not use any words while we were there. He cannot sit, crawl, stand, or walk. We did not see him move about the floor, he needed to be held. This is frustrating for him. We did not observe him using his hands. I tried to place toys in his hands a he did not grab them. He did not laugh or smile.



Boy, born July, 2013
Darby has Arthrogryposis – both upper and lower extremities.  Additional pictures available.

Listed: January 2015


Married couples and single women may adopt
Adoption process approx 8-12 months
Three trips – both parents need to travel for trip one
Trip one is 10-15 days
Trip two – about 6-8 weeks after trip one, for court
Trip three – about 6-8 weeks after trip two, 7-10 days long




Boy, born Dec 2008
Eric has arthrogryposis and compensated hydrocephalus. He has had a surgical repair of spina bifada.

Listed: Jan 2012

Eric is a smiley little fellow who likes to feel his caretaker’s heartbeat or pulse, because it comforts him. He would be a wonderful little brother in a household of older children.

Overall, he is healthy and would do well in a family without smaller children. His upper body is quite strong and he has full use of his hands, fingers and arms, but he has little control or movement in his lower limbs and they are significantly smaller than his upper body. He can squeeze very tightly with his hands, and reach a full arm’s length with no problems even though his resting position is the one you see in the pictures. He does not talk, according to the caretakers but does make sounds to communicate. Cognitively, he has significant delays due to his history of spina bifida and hydrocephalus. He is very much still an infant in many ways.

He may have a sister a few years older in a different region who possibly could also be available for adoption or he could be adopted separately. She also has special needs.
*** I am eligible for an Older Child Grant! Grant funding is dependent on a completed application and available funds. For more information, visit: Other Angels Older Child Grant ***