Girl, born 2012
Spastic cerebral palsy. Epi- symptoms – West syndrome, Microcephaly. Congenital heart malformation – small atrial communication; open foramen ovale; small left-right shunt at atrial level and mild pulmonary valve stenosis.
Motor – with generally increased muscle tone, does not do enough active movements. Placed on her stomach raises and keeps her head rests on her elbows and hands for a short time. Taken by hands holds her head upright; without support on her legs. Placed in the seat with support / positional chair in the corner of the bed / she stays like that but with her head down.
Sensory activity – reacts to sound, listens when she is spoken to, but does not turn her head to look for the source. Follows with her eyes and partially turns her head but erratic and choppy. She cannot catch objects and is not active when awake. Periods of wakefulness are getting shorter, the child mostly sleeping or stuporous.
Emotional and social development – stares in the face of an adult: when awake smiles spontaneously / without provocation / and when teased, but no longer gets lively as before. She is enjoying quiet and pleasant music.
Speech – rarely makes noise, does not coo. Does not make combinations of sounds. Does not understand speech.
She eats 4 times a day transitional food with from a feeding bottle. She sleep more and more, when awake she is often restless, not actively awake.
Because we only have this child’s file for a short time, she will not be able to receive donations until a family is found for her.