Lucy is a 5-year-old girl (born 2007) who has congenital microcephaly, infantile cerebral palsy, severe mental delay,delayed psychomotor development, multiple malformation syndrome. She rolls from back to belly and vice versa independently. She remains in a seated position for a short time when provided with some support. She shows interest in toys – she grabs and holds a toy in her hand, waves it around and examines it closely. She responds emotionally to seeing a familiar adult.
Linus is a 4-year-old boy(born 2009) who has microcephaly, congenital anomaly of the central nervous system, delayed psychomotor development, severe mental delay, multiple malformation syndrome. When put in a baby walker he steps on the floor with his whole feet and starts to slowly go around the room in the walker. The boy remains in a seated position for a short time with an adult’s assistance. He follows each and every movement of a person or an object with his eyes and head. He loves to watch the other children playing and moving around.
These siblings have very similar diagnoses. Biotinidase deficiency is suspected. There is an emotional bond between the children and they often hold hands, smile, laugh, look for each other with their eyes and jest with each other when they are placed side by side.
Because we only have these files for a short time, they will not be able to receive donations until a family is found for them.