Girl, born Dec 2008
Helen was born with encephalocele, which is type of neural tube defect that occurs very early in fetal life where the embryo’s cells that form the skull do not come together to close over the brain. The result is a defect in the bones of the skull, causing brain tissue to protrude from the skull.
Helen loves to make herself laugh. She enjoys spending her time playing, humming, and observing things around her. She is doing well and getting strong. She is able to walk with help and has recently been able to pull herself up. She loves to go outside to the playground and practice her walking. Her smile is so cute and her laugh so hearty.
Helen has had surgery, and additional information is available about her surgeries and hospitalizations. She has vision concerns, and has recently begun speaking a few words.