DOB: 2008 Diagnosis: Von Willebrand disease, epilepsy, strabismus and delayed neuropsychological development.
Owen has been diagnosed with Von Williebrand disease and as a result is also anemic from the bleeding episodes. He is also reported to be very hyperactive and he’s currently being given medication to help calm him down so that he can focus better. The hope is that this will also reduce some of the bleeding episodes. His development is delayed, though he’s recently started making more developmental progress just to a change in his current environment. He walks and tries to run. He eats from a spoon. He is beginning to babble and make sounds. He plays in the children’s play room and enjoys going on walks with caregivers. He receives wilate treatments as needed for his condition.
Update 2014: He has stable and consistent weight gain; walks stably and tries to run; produces random sound combinations; follows simple instructions; loves it when someone sings to him; builds up a pyramid of elements; plays with toy cars.