Boy, born March 2009
Photo from May 2011 (More photos available)
Neil has hydrocephalus. In January of 2010 a ventriculo-peritoneal shunt was placed to drain the fluid that would otherwise collect in his brain. Neil also has a history of seizures and is receiving anti-seizure medication. He is currently experiencing excellent health and is gaining weight steadily. He does not sit unassisted due to the weight of his head. When laying flat he can roll himself from side to side.
From someone who works with him:
Neil truly is a joy every day to interact with! He captures the essence of innocence with the way he sweetly watches the world around him and smiles in response to conversation. Though he does experience extremely painful headaches due to hydrocephalus, he responds well to simple Tylenol and can get back to enjoying the rest of the day. Neil absolutely loves to be carried around to look at the blue sky and will laugh and giggle as he sees its beauty. Other than the occasional headaches, Neil stays extremely healthy and his seizures are completely under control on Phenobarbitol. He enjoys holding his own bottle and playing around after he is finished waving it around to amuse himself in an adorable fashion. We are in the process of getting Neil a new special chair that will help him better interact with his environment!