Ryan

Boy, born January 2007

 

We finally have medical information for sweet Ryan!

 

Ryan has Noonan's syndrome; and he's diagnosed with organic lesion of the central nervous system as a result of genetic pathology.  He has a  severe delay of psychological and motor development.

Ryan has a drooping right eyelid, and is farsighted.  He also has a congenital heart defect (atrial septal defect), and hypospadias (a birth defect in which the opening of the urethra is on the underside.)

 

From a volunteer who spent several months at this orphanage:

According to the workers, Ryan has a life-shortening illness which is preventing his organs from growing and developing as they should however I have had no way to confirm that. What I can say is that he is tiny and I would be surprised if weighs even 15 pounds. This tiny little boy captured my heart from the first time I saw him. He does not interact much but sometimes you can get him to smile. He is capable of pulling himself up at the side of the crib but he mostly stays sitting or lying down and is usually banging his head on the side of the crib. He resists being held but over time he warmed up to me, wanting me to hold him when he was sick and occasionally he would even make his way to the side of the crib when he saw me coming towards him. I also learned that he loves the "airplane game" (being lifted over my head as I was lying on my back) and I even got him laughing on several occasions. Heartbreakingly, Ryan receives no attention from the caregivers and, since being transferred to a new group, he spends most of his days alone in a tiny soft playpen, rocking back and forth. I don't know if what the workers said is true but I do now that, no matter how many days Ryan has left on this earth, he deserves more than the loneliness and neglect he is living right now. Oh how I pray for a family for this sweet angel boy.

 

LOTS more pictures available.

$1288.50 is available towards the cost of my adoption!