Russ

Boy, born August 2005

 

Russ's profile says "goloproentsephaliy" which is unclear, other than there's some condition with his brain.  It's unclear if it's a physical or mental condition.

 

It has been suggested that his 'goloproentsephaliy' may actually be holoprosencephaly like Catherine 9HA, but it would be a milder form than hers i.e. lobar or semi-lobar holoprosencephaly, rather than alobar.

 

We're hoping to get additional information soon.