Because every family deserves the blessing of a child with Down Syndrome...
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Owen 3G

egxb-3
Boy, Born December 2007

This darling little boy is waiting for his forever family, and we believe his condition to be one called Saethre-Chotzen Syndrome.

Also known as Acrocephalosyndyldactyly Type Chotzen or Saethre-Chotzen Syndrome. Chotzen Syndrome is a dominant genetic condition. They have a tower-shaped skull (acrocephaly), fused fingers and/or toes (syndactyly), asymmetric face, widely spaced eyes, droopy eyelid (ptosis), strabismus (crossed or “wall-eyes”), beak-like nose, small upper jaw, and jutting out lower jaw (prognathism).   Some plates in their skull close early.   This is called craniosynostosis.   Often people with Chotzen Syndrome are mildly hard of hearing. Sometimes they’re unusually short.   Occasionally the closing of the plates in their skull can compress their brain and slow their development.   Sometimes boys with Chotzen Syndrome have undescended testicles.

Owen’s grant of $4263.25 was gifted to Victor in Asia.  

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