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Olie and Ozzie #1-31

Boys: 2012, 2014
Diagnosis:  Coffin-Lowry Syndrome

Olie and Ozzie live together in the same group at the orphanage. However, the government officials in their birth country have determined that they can be separated and adopted individually if a family steps forward for just one of the boys. The agency’s desire is to keep the brothers together if at all possible.

Olie is the older brother.  He pulls up to a standing position while holding on to steady support and makes steps sideways. He walks held by both hands. From a standing position, he transfers to a sitting position while holding on to a steady support and then carefully eases off his hands. He reaches out to objects, picks up a toy with whole palm and with both hands. He puts a block in a box and knocks two blocks one against the other. He claps with hands. He shows “how big he is”; he gives his hand for “hello” and blows kisses. He pronounces combinations of sounds and coos. He observes the actions of the people around him. He turns his head towards a person who talks to him. He reacts at the change of intonation and timbre of the voice. He differentiates the tone of the speech – angry or friendly tone and reacts with cry to the angry tone. He stops crying and smiles when talked to. He smiles to the attention from an adult. He loves playing peek-a-boo with an adult. He laughs loud when teased or while playing with an adult. He is cautions with strangers. He differentiates between familiar adults and strangers. He picks up a toy given to him and plays with it. He turns when called by his name. He is a calm child with good emotional tone. He interacts with children and adults. He demonstrates positive and negative emotions when contacted. He maintains eye contact. He cheers at the appearance of persons whom he likes. He cheers up when an adult plays with him. He cries when he’s hungry and when the adult leaves. He is bonded to a preferred adult.Olie Ozzie

Ozzie is two years younger than his brother. He can hold his head up when placed on his belly. When picked up he can hold his head for a short period of time. He can turn from his back to his belly. He can sit without support for short period of time. He doesn’t crawl and can not stand up. He can direct his hand towards an object that is close to him and can grab it. He plays with toys for short period of time. His grip is weak. The child’s reaction to light, visual, heat and tactile stimuli are slow. He reacts to sounds by turning his head in the direction the sounds comes from. He can follow objects. He smiles and has positive emotions when interacting with adults and when he is around the rest of the children. He understands the tone the adult speaks with. He laughs when playing pick-a-boo.

Photos and videos from July 2016 are available through the agency.

Because we only have this child’s file for a short time, he will not be able to receive donations until a family is found for him.

Update 2017:

Ozzie

Age: 3

Diagnosis: Familial laden –parents with mental delay and two brothers with hydrocephalus, both of whom passed away and he has brother with the same malformative stigmas and delays as him; Hypotrophy 2nd degree; Inguinal hernia; Facial dysmorphism; Syndrome of Coffin-Lowry; Hydronephrosis 1st degree. Familial Cardiomyopathy; Kyphosis and lordosis; Delays in the neuro-psychological development.

Ozzie is a sweet little boy that just turned 3 years old! He and his brother are currently living in a baby house in Eastern Europe. This child has been hospitalized for various health reasons. Ozzie cannot stand nor walk on his own. He pronounces sounds. His lower body is shorter and decreased muscle tone. He enjoys being around other children and adults. He doesn’t show much emotion and sometimes cries without obvious reason. He requires help with eating and bathing.

Olie

Age: 4

Diagnosis: Familial laden –parents with mental delay and two brothers with hydrocephalus, both of whom passed away; Born at home; Congenital anomalies with predominant affection of the facial area; Coffin-Lowry Syndrome; Congenital cardiac malformation –ventricular septum defect 5 (VSD); Scoliosis and lordosis; Converging strabismus: Delays in the neuro-psychological development.

Olie is an adorable and sweet little boy. He is currently being raised in a baby home in Eastern Europe with his brother. He has been hospitalized a few times for different health reasons. He moves around okay and can pronounce one syllable words. He has minimal muscle tone mostly in his lower body. There is delay in his neuropsychological development. He loves playing with blocks and other toys. He engages well with other children with playing and gets excited when familiar friends come around. Olie gets emotional when he is left or hungry. He is fed by an adult as well as bathed. He sleeps calmly.